HIV TREATMENT
2020
Action 27. Mobilize their networks and work with communities to help build treatment literacy, generate demand, and expand access to ARVs among children.
Action 34. Increase efforts to share information on the roll-out of new paediatric formulations, including lessons learned.
Paediatric HIV & TB : Rome Action Plan
16. Promoting peer to peer support structures to promote greater use of point of care early infant diagnosis
17. Advocacy of implementation and involvement into the design of the programs of community organizations and advocates.
18. Treatment literacy awareness, building trust, provision of information, encouragement of men to engage in health care needs of their family, and support community based organizations
October 2021
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Taking part EGPAF session to speak on the role of CSO’s and communities in ensuring access to Peds ART and supporting transition to DTGp
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April 2021
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GNP+ was taking part in GDG work for WHO on development of EID POC recommendation and successfully advocated for the recommendation to be strong and include community involvement and literacy, demand, etc.
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Together with partners, GNP+ was advocating for several improvements to be included into DP for thematic segment on 47th December PCB. These advocacy efforts were successful.
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Advocacy around GAS (also together with partners - thanks a lot for excellent collaboration) – was successful; everything was included.
With regards to the UNICEF tools, GNP+ is busy finalising a paediatric treatment literacy toolkit for communities. It should be ready in the next couple of weeks. It will be posted on social media and website as soon as it is approved.
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Worked with MoH in Unitaid-funded POC EID project countries to ensure transition to national management and new funding sources. Funding now secured in almost all project countries.
51. Mobilize communities to reduce stigma and create demand for point of care diagnostics in order to improve early infant diagnosis.
October 2020
The Strategic Framework –Early Infant Diagnosis: A strategic framework for community-based organisations - in English and French which can be found here. A Resource pack (which consists of materials for: caregivers, advocates, Guidance for Policy makers and peer supporters) – also in English and French ( which can be found here). GNP+ is piloting the framework in Malawi and Senegal and in the process of development on paediatric treatment literacy tool. All the above was financially supported by UNICEF.
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GNP+ took part in WHO GDG group work working under HJCEID recommendation development
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Signed agreement in April 2019 with UNICEF on demand creation of POC EID diagnostics and to create a strategic framework and resource package to support countries to implement demand creation activities for POC EID in collaboration with communities and networks of PLHIV in the countries. GNP+ and UNICEF are currently working together to develop strategic framework as well as the resource pack for civil society engagement in POC EID. The initiative is intended to support scaling up POC EID in western and eastern Africa. GNP+ is planning information collection at the country level to support development of guidelines for civil society engagement and advocacy for POC EID technologies.
The framework and resource pack for community and civil society engagement on EID POC is almost completed, on track for publication by the end of Q1 2020. GNP+ is also developing a brief on EID POC for community advocates to use in influencing PEPFAR COP processes and GF country proposal development for inclusion of EID POC in national programs.
56. Support treatment preparedness programs, ensure improvement of treatment awareness among caregivers of children of all ages and adolescents, and work jointly with other stakeholders on treatment literacy and demand creation for new pediatric formulations.
June 2022
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Dedicated FTE for Pediatric and Children affected by HIV advocacy. With support from Aidsfonds, GNP+ have a program officer to organize and coordinate Civil Society and Community advocacy.
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End-Pediatric AIDS In Children(EPIC): This is an advocacy initiative led by GNP+ with support from Aidsfonds. The aim is to collectively mobilize, coordinate, amplify and support civil society and community engagement in Pediatric and children HIV advocacy from National to Global levels. The initiative will create a pool of national level parent and caregiver advocates (Mama and Papa Bears) who will be capacitated and equipped to lead advocacy primarily in the following seven countries; Zimbabwe, Mozambique, Tanzania, South Africa, Uganda, Kenya and Nigeria
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GNP+ joins CCABA: GNP+ has formally joined the Coalition of Children Affected by AIDS (CCABA) through its staff Florence Anam and Annah Sango who lead on the GNP+ Advocacy on Pediatric and children HIV advocacy
Action 10. Promote the revision of national procurement plans to align with WHO recommended regimens and the Optimal Formulary, and support the provision of reliable forecasts and the consolidation of orders.
Action 22. Support the early adoption of priority formulations and diagnostics and take steps to facilitate their wider roll-out, including by developing introductory guidance, materials, and other tools for health facilities.
Action 27. Mobilize their networks and work with communities to help build treatment literacy, generate demand, and expand access to ARVs among children.
Action 28. Raising awareness in global fora about the unmet diagnostic and treatment needs of children with HIV.
Acton 29. Promote uptake by mobilizing their networks of hospitals and community structures to distribute paediatric medicines in hard to reach places and in situations of conflict and crisis.
Action 34: Increase efforts to share information on the roll-out of new paediatric formulations, including lessons learned.
10. (individual commitment)The Global Network of People living with HIV (GNP+) committed to mobilize their networks, in particular women living with HIV, to increase demand generation, advocacy, and monitoring to increase access to treatment for children living with HIV.
Action 27
The Global Network of People Living with HIV (GNP+) launched a survey, The State of People Living with HIV at the end of 2017. This survey included questions on infants and childrens’ early diagnosis and optimal HIV treatment and care in their country as well as, information regarding stock outs of ARVs. Results of the survey are being analysed. GNP+ is planning to release the results at AIDS 2018.
Action 28
Results of the the State of People Living with HIV survey are being analyzed. GNP+ is planning to present the results at IAC2018.
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Individual Commitment
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The Global Network of People Living with HIV (GNP+) launched a survey, The State of People Living with HIV at the end of 2017. This survey included questions on infants and childrens’ early diagnoses and optimal HIV treatment and care in their country as well as, information regarding stock outs of ARVs. Results of the survey are being analysed. GNP+ is planning to release the results at AIDS 2018.
GNP+ launched a new webinar series to provide treatment updates to people living with HIV. The first webinar focused on access to dolutegravir (DTG) and viral resistance to first-line ARVs (2 March). Access to paediatric versions of DTG was discussed. The DTG webinar recording is now available at www.gnpplus.net/civil-society-speaks-fighting-for-universal-access-to-dolutegravir-dtg/
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119. Advocate for and support Ministries of Health to rapidly transition to optimal paediatric formulations as outlined by the latest WHO guidelines, provide coordinated support for the development and implementation of transition plans, inform clinicians and patients of the value of transitioning to new formulations, and ensure communication of reliable information on the availability of new formulations in-country.
120. Support the scale up of access to priority formulations and diagnostics and take steps to facilitate their wider roll-out, including by performing operational research, developing introductory guidance and education, materials, and other tools for health facilities and local community health structures.
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121. Promote the revision of national procurement plans to align with WHO recommended regimens and the EML-C, and support the provision of reliable forecasts and the consolidation of orders.
122. Mobilize their networks and work with communities to help build treatment literacy, generate demand, and expand access to TB diagnosis and treatment among children in close collaboration with other stakeholders.
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123. Raise awareness in local, national, and global fora about the unmet diagnostic and treatment and prevention needs of children with or at risk for TB.
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124. Foster and more actively participate in coordinated and collaborative advocacy to:
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Increase funding for TB research & development, introduction and scale-up of priority paediatric drugs and formulations;
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Accelerate regulatory processes for rapid adoption and uptake of optimal paediatric TB drugs and formulations; and
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Ensure sustainable access to optimal TB testing and treatment for infants and children.
125. Tackle the TB stigma and discrimination in communities, schools, and healthcare settings that prevent children and adolescents living with TB or at risk of TB from accessing testing and treatment, including promotion of awareness of the difference between infection and disease and include messages of hope regarding treatment of both HIV and TB.
126. Promote uptake by mobilizing their networks of hospitals and community structures to distribute paediatric medicines in hard to reach places and in situations of conflict and crisis.
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